Friends of Joyful NoiseDate: April 25, 2012
April is National Autism Awareness Month and while that's important to me, it is more important to me to advocate for all of those with disabilities of any kind, especially singers and musicians with disabilities. If I have a chance, I give autism and disability a "face" to those in our profession. Heck, even if there is no clear "chance," I do it anyway! I use whatever platform I can to get the word out about our Folks. The reason it's important is so more choruses such as Joyful Noise are formed-kudos to Encore Joyful Noise and Expressions of Joy-and our Folks have a place for their musical abilities to be used. Or so they may have a place to listen to live music, if they are not able to participate. They are people with talents and tastes and to waste them would be a shame. I live in the Chicagoland area and in case you don't know, our hometown "band"-the Chicago Symphony Orchestra-is on a two week tour. Last week, they were in Russia. We have been getting daily reports from the cultural writer of our paper of record, the Chicago Tribune. Some days I have time to read them, some days, I don't. Monday, while waiting for a student, I did. And I was so happy that was the day I had time. The picture accompanying the story was of a few of the musicians and the widow of someone's mentor being given flowers. One of the musicians pictured from the CSO was a friend of mine from music school. He was in grad school when I was an undergrad and our sisters were also friends in college. I know him and his character. I also know he has a nephew who has autism. I bring this up because, well, you'll see. Buried in the middle of the story was a bit about a string quartet from the CSO visiting St. Petersburg's Orphanage No. 11, a school for children in foster care and others who had been abandoned because they suffered physical/mental and/or emotional disabilities. Russia is not exactly disability friendly but they are trying to improve conditions so this was a government approved visit. (The CSO group, Pro Musica, also visited a similar school in Moscow.) By all accounts, the kids loved it and behaved appropriately. Some were amazed *these kids* could appreciate music. I am not sure my friend had anything to do with this or he simply *just* played. But he certainly participated. He's a great guy and a loving uncle so I wouldn't be surprised if he helped organize it. If members from the Chicago Symphony Orchestra can go out of their way to play for our Folks, and even convince people they should, why can't we? Why can't we "come out" about having a disabled family member to our peers? We can do what we can to put a face on disability and show acceptance in our communities but we have to live it all the time. ALL THE TIME. Date: April 5, 2012
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March is Disability Awareness Month and April is Autism Awareness Month. In this ChoralNet Community--Friends of Joyful Noise--I know you are aware of disability and autism. Most of you are interested in disability for your own reasons, whether you work with those with challenges or have a family member with a disability or you are interested because the populations fascinate you or you compose music for our kids--any of a number of reasons.
I would challenge you this month--in observance of Autism Awareness Month and of all disabilities--to think about how your life has changed because of your interest--whether personal or professional. Share with us this month and tell us how your life has changed.
I know I am a better person because of my son. I'm more patient and willing to try different things to get my students and choirs to learn what I try to teach them in rehearsals. I'm more willing to give people the benefit of the doubt and....I've learned even those with disabilities have their own taste and own opinions about a LOT of things, just like anyone else.
Date: March 9, 2012
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2011
We are just about back to normal--at least, mostly--here in the south suburbs of Chicago. Russell's health continues to improve. We celebrated his birthday almost two weeks ago with brunch the day before, since both of his brothers would be home on the Sunday. He has had almost two weeks of presents and attention from friends and family and is almost, almost, back to his funny, silly self.
The big news, I suppose, is I finally finished my book. I have been working on it, off and on, for about nine years. It started out to be a sequel, an adult version, of my husband's children's book about Russell. It kind of morfed into a collection of essays about raising him and his brothers and music and family and how we managed to remain sane during it all. Chuck's first book was reworked and the new edition came out about this time last year--that really pushed me to finish. So, I am editing the 21 essays down to about 15 to 18 and submitting them to the three publishers who have expressed interest in them. I have to stop myself, now, because I am in the essay writing mode and everything is fresh fodder. I am going to write one more and I think you will agree with me about doing it when you hear the subject.
In my previous blog posting, I mentioned hosting a post-concert reception for the local symphony. We had "get to know you" receptions for the conductor/candidates after each of their audtion concerts. The folks inivted are the symphony's excutive board, the search committee and musicains from the orchestra, or at least those on the musician's committee. I've known many of the musicians and a few on the search committee for many years. One member of the search committee is our high school's orchestra conductor and has had all three of my sons as students, including Russell as a music inclusion student. "Doc" is a great guy, a wonderful music educator and one of my favorite people.
Because we are never sure how people will react to Russell or how he will react when his space is different, we decided Russ would watch one of his favorite movies in our basement rec room during our reception. "Pinocchio" was cued up and we had lots of popcorn ready for him--and Russ was looking forward to it. I mentioned Doc would be at our house to Russ and I would make sure he would see him before he left.
The reception went about as smooth as those things do, though I should have had more red wine--those people drink it like water! And as Doc was getting ready to leave, I asked him to wait so Russ could say hello. Doc hadn't seen Russ for several years, and after hearing about his hospitalization, wanted to see him. Greg and Ben went into the basement to get him and as soon as he saw Doc, Russ smiled hugely and hugged and KISSED him on the cheek. And then giggled and went upstairs to his room. All of us were a little stunned. In fact, one or two of the orchestra musicians asked about his music inclusion with Doc. We explained, at the end, Russell was able to conduct his high school's orchestra because of Doc and the wonderful kids in the orchestra who INSISTED he be allowed to. The night of that concert, there wasn't a dry eye in the house. And on the night of our reception, after Russell saw his music teacher and showed him he hadn't forgotten him, we all were a little misty, too.
Over and over again, Russell shows us to not count him out. Don't count any of "our" kids out. And that's what I will being writing about.
Date: January 27, 2012
Priorities I can tell this is going to sound whiny. I haven't been a whiner since I was in high school, I swear. But sometimes, no matter how hard I try, my voice starts to creep up in pitch, my words begin to flow like a sixteen-year-old's and the whine of my youth takes hold. Most of you probably won't blame me. The last few months have been rough on me-for lots of reasons. My chamber choir-what I *really* do-is at a cross roads. We are finally breaking into our community's arts scene but several other performing groups hold on to their territory-we're seen as interlopers-eventho we are a chamber choir, don't give as many concerts per year and are not the big choruses they are. Still, the word on the street is we're good and we're happy about it. Our fall concert was probably one of the best concerts I've ever conducted and my singers are a bunch of the nicest people I've ever worked with. It's stressful--but a good stress. My husband is now past-president of the board of our local professional symphony. But since they are also in the midst of a new music director search, any extra time he gained from leaving the presidency has been lost because he's on the search committee. So far, we've had a few conductor-candidates come through with several more to come. And hubby has volunteered me to host a reception at our home after a concert for one of the conductors. It's interesting to see the *other side* of a conductor search. I don't necessarily mind but I am seen by the usual *Ladies who Lunch* for this arts organization as not doing as much as I should be. Stressful! I am finishing a book-editing-of essays about raising a child who had autism. My husband wrote a children's book about Russell years ago and this is sort of a companion work. Chuck's book was updated last year and it seemed a perfect time to finish the darn thing. I even have three publishers interested. And last fall, after my concert cycle and before I had to conduct a "Messiah," thought I'd get a chance of doing just that. The best laid plans have a way of not turning out, don't they? In mid-November, as I was having a coffee meeting with one of my singers about a venue, I got a call from one of my sons. He was helping me by staying with Russell that morning-- I could have my meeting before he had to go to work. He told me he had just called 911 because Russ seemed to be having a seizure and told me to get home. After Russ was transported by ambulance to the hospital, he had another seizure in the ER. After some tests and four days in the ICU, we know what happened. I won't go into the *whys* here, but will tell you things suddenly slip into perspective when something like this happens. We have to track everything he eats and how much, have to be mindful of his weight and how much liquid he drinks and how much exercise he gets. All in all, he is healthy now and doing well but……….autism sucks! It may interest you to know, after I sent someone home for my clothes and my laptop so I could stay in the hospital with Russell, I got him to calm down and to sleep by playing YouTube selections from "Fantasia"-especially the "Pastoral." I've always used music to help Russell in stressful situations and watching him sleep with tubes coming out of him and restrained, I needed music to calm me too. I had asked them to bring my CD player and CDs and sang to myself quietly-I thought-one of the Schubert vocal quartets I am preparing for spring. I sang "Jesu Parvule"-the Alfred Burt carol-to Russell, too, almost every night we were there. One of the night nurses came in to tell me it was the prettiest thing she ever heard coming from any ICU room…….Russell's music and me singing. I know he heard me and was comforted at his most ill because when I came over to his bedside to switch the YouTube selections, he grabbed my hand and tried to kiss it. Things are almost back to normal here in the south suburbs of Chicago. I am working on auditions for my chamber choir and have had several really good days of editing this week. Russell continues to do well and is as spunky and silly and smart as he's always been. He keeps us on our toes, our Russell! The sniping of me not doing enough for the local symphony has continued as well-a few months ago, it would have bothered me. Not so now. I will get the wine and cheese and crackers, clean my powder room and make sure the living room is vacuumed. I will slap a smile on my face when the Ladies chastise me. I will go to the concerts, feed the music director candidates and talk of music. I will be charming but I am still a little heart-sick. In my heart, I know what is important. The music is important. The music changes lives. The music comforts. It is so much more important than any one of us. We know it because we've seen it with the singers of JN and EOJ and EJN. Music is more important to those singers than it probably is to us. We need to be mindful of that. I know music helped save Russell this fall-I know it. I have used music with Russell since he was a little boy, before we had even a glimmer of his disability. It is part of his life and has been an important part, too. He is non-verbal so he doesn't sing-he hums-and he is a discriminating listener. Many think music is just an *extra something* in the lives of those with challenges and not important in the grand scheme of things. I believe it is more important than any of us realise. I know music helped Russell-and me too-get through this difficult time. View replies (1) Date: August 1, 2011
My thoughts about beginning new Joyful Noise Choruses across the country. Scatter the Joyful Noise Seeds! I love to garden. I love to plan in the dead of winter. I love to buy seeds and prepare the soil. I love to go to the nursery to pick out the plants in my plan and even go a little bit by “instinct” some years. I even love to put the plants in the soil and water them faithfully the first month or so, until they “take” and I can relax and enjoy.
Several years ago, my husband and I and our family went to a wonderful indoor zoo in Minnesota. We all became fascinated with their butterfly garden and decided we would try to replicate it in our Chicago-area garden. As the “official” family gardener, I began to do research as soon as we got home that August. I also learned the plants I would have to include would also attract hummingbirds as well.
We made a list of plants we would want to include, decided where in the garden to locate these plants—and chose the area right under our kitchen window so we could watch—and looked for feeders to entice the butterflies and hummingbirds. After the lists were made and feeders bought, there was nothing to do but wait for fall and winter to pass so we could begin with our plans in the spring.
That first year was truly an experiment. In the past, I had always planted things in my garden I was familiar with, knowing what to expect and when. With this garden, it was more of a question of following what I had read and waiting and watching. I was pleased with the coneflowers and bee balm and yarrow and blackeyed-susans. It surprised me to have the phlox—a plant I have been growing since I was a little girl—not do well and develop powder mold. It delighted me to have the mini-roses—a type of rose I had not tried before—do very well. And the daisies--THE DAISIES—took over!
Every year since that first year, I have added to or taken out plants. My goal is not have to do a thing, once the initial weeding is done in the early spring. And every year, it is closer to being the fact. And the butterflies and hummingbirds are coming, more each year. I have not had good luck with milkweed but my phlox have gradually improved.
The last two years, I have tried something new, something which goes against my planning of this garden and in doing so; I have improved it and have attracted more of those beautiful flying critters. And it is more breathtaking than ever. I plan to continue with this strategy. I decided I wanted more of a wild look, more of a random feel and more of a surprise for ME. I simply left the plants I had already planted where they were and bought wildflower seed mixes for butterflies and hummingbirds. Last year, I scattered the seeds in a bare portion of the garden and got some interesting plants such as asters and marigolds and one VERY BIG sunflower. This spring, I bought roll out flower mats and cut them in smaller sections and dispersed them in a very unmethodical way. I have cosmos and lots of asters and more sunflowers than I thought could fit in that area but….I got my surprises this year and I’m very happy. And there is a little bit of a surprise I hadn’t expected as well. Our entrance in the front of our house is formal, with hostas and daylilies and pots of pansies and geraniums. And one, lone Queen Anne ’s Lace alongside the hostas, looking out of place, but beautiful. My husband asks me if I want it pulled and I keep telling him I like there. I don’t know how the Queen Anne’s got there—a seed carried on the wind?—but I like it where it is.
Most of us, in our roles as directors and conductors, plan things to within an inch of our lives. We plan in advance, whether repertoire or venues or teaching methods or singers. You can liken it to my garden planning—I did research and then waited to put my plans into action. I chose, in the beginning, plants I was mostly familiar with and knew how they would behave…and they were beautiful. Trying something unfamiliar with results I wasn’t sure of proved to be the turning point for my garden. And it is just as beautiful with the addition of wildflower seeds. I will never know how exactly it will turn out from year to year and it excites me.
I like to think of Allison and the wonderful singers of Joyful Noise as a wildflower garden and our wildflower seed keepers. They have collected the wildflower seeds and it is up to us to scatter them. We see the beautiful, wildly beautiful Joyful Noise Garden, not the kind of choir most of us have been trained to direct, but seeing them makes us want one for our own community. From the “seed sharing” in Chicago at ACDA, there is one new wildflower garden being tended in New Mexico and two more being planned in Illinois and Wisconsin. Will they be exactly like Joyful Noise? Most likely not, but they will have their own surprise sunflowers pop up and create beauty in their own place. And that is a good thing-- a Joyful Thing! |